News

Keep up to date with news, events, research & resources

  • Support bricks

    WAMES helpline closes over August Bank Holiday

    • 28 August 2026
    WAMES August BH helpline hours    0290 2051 5061 closes 5pm 25th August, reopens Tues 1st September  For emotional support, the Samaritans can be contacted 24 hours a day, 7…
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  • MEVW webinar 4: Cardiff & Vale UHB 2 Sep 2026

    • 9 August 2026
    Discover how NHS Wales supports people with ME/CFS: self-management webinars Cardiff & Vale Health Board’s Keeping me well Service will be talking about how their service can support people with…
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  • Severe ME Day – 8 August 2026

    • 7 August 2026
    Still speaking out! Across the world today, people are raising their voices for those who cannot make themselves heard. Severe and very severe ME/CFS can silence people — not metaphorically,…
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  • Health Minister answers a question about ME biomedical research and Wales

    • 4 August 2026
    The Minister says: ‘I recognise that research is a fundamental component of high-quality healthcare’ Darren Millar MS tabled a written question to the Cabinet Minister for Health and Care, Mabon…
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  • Senedd Q&A on ME/CFS, 30 Jan 2024

    • 31 July 2026
    Delivery plan and strategy for ME? Back in 2024, on 30th January 2024 Mabon ap Gwynfor MS tabled a written question in the Senedd: What action has the Government taken…
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  • Health Minister answers questions about ME/CFS in the Senedd

    • 31 July 2026
    The Minister’s goal: ‘appropriate, safe, and compassionate care’ Darren Millar MS posed 4 written questions to the Cabinet Minister for Health and Care, Mabon ap Gwynfor MS, about ME/CFS healthcare…
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  • Meeting with Health Minister – ME & LC services in Wales

    • 30 July 2026
    Evidence‑based proposals for change On Tuesday 28 July, WAMES met with the Cabinet Minister for Health and Care, Mabon ap Gwynfor MS, alongside representatives from Action for ME, SMEDC and…
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  • Blue Sunday Concert 2026

    • 9 June 2026
    The Blue Sunday Concert for ME For the 3rd year running Isaac Greer has organised a concert to raise awareness of ME and to coincide with the Blue Sunday Tea…
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  • MEVW self-management webinar 3: Hywel Dda UHB 29 June 2026

    • 8 June 2026
    Discover how NHS Wales supports people with ME/CFS: self-management webinars Hywel Dda University Health Board’s Long COVID and ME/CFS Service will be talking about how their service can support people…
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  • Carers Week 2026: Building carer friendly communities

    • 8 June 2026
    During Carers Week, 8-14 June, Carers UK tell us: The UK’s 5.8 million unpaid carers are the backbone of our communities. Every day, they provide support to friends, family members,…
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  • Video: Dr. Nigel Speight: Children with ME taken into custody

    • 2 June 2026
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  • Sequence ME – £4.75m for a world-first genomics study

    • 1 June 2026
    Looking for for hidden genetic variants that are driving ME/CFS and LC On World ME Day, 12 May 2026, the UK government announced a £4.75 million investment in the world’s…
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  • Opportunity to shape future ME/CFS Research with the PRIME Hub

    • 1 June 2026
    Join the PRIME ME/CFS Research Hub The PRIME ME/CFS Research Involvement Hub is a group of people who are interested in helping to design and develop research in flexible ways….
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  • Hub for ME/CFS Research into Biomarker Research and Understanding the Biology of ME/CFS

    • 28 May 2026
    Morten Group research – final report The ME Association gives a final report on the major research programme at the University of Oxford, led by Professor Karl Morten. The MEA…
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  • Free online ME/CFS module has been updated

    • 11 May 2026
    Lerna / Study PRN The free educational resource on ME/CFS from Lerna/Study PRN has been updated by the author Dr Nina Muirhead. 1 CPD point is available for health professionals….
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  • Blue Sunday Tea Party 17 May 2026

    • 10 May 2026
    Blue Sunday Tea Party 2026 Blue Sunday on 17th May 2026 is a chance to meet others online, have a cuppa, raise the profile of ME and maybe raise some…
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  • World ME Day 2026 #EducateME

    • 10 May 2026
    #Educate ME ME/CFS is a seriously disabling condition impacting at least 67 million people. Medical education is lacking in most countries. Patients are denied the care they deserve. Consequences are…
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  • Do you get Continuing NHS Healthcare? You can now ask for Direct Payments

    • 2 May 2026
    Changes in the law under the Health and Social Care Wales Act 2025 mean that from April 2026, people in Wales who get Continuing NHS Healthcare can ask for direct…
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  • MEVW webinars 2026 – North Wales Living Well Service

    • 28 April 2026
    Discover how BCUHB supports people with ME/CFS in north Wales The 2nd in the ME Voices Wales series of lunchtime webinars takes place on Wed 6 May 2026. The aim…
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  • WAMES Vision for ME/CFS healthcare

    • 14 April 2026
    WAMES has a vision for ME/CFS healthcare in Wales We’ve not been asking for anything special, just parity with other medical conditions – respectful treatment from informed professionals. Here is…
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