Delivery plan and strategy for ME?
Back in 2024, on 30th January 2024 Mabon ap Gwynfor MS tabled a written question in the Senedd:
What action has the Government taken to develop a delivery plan and strategy for ME? WQ90880 (e)
This was answered by the Minister for Health and Social Services, Jeremy Miles MS on 6th February 2024:
Improvements in services for people with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) in Wales are being supplemented via our Adferiad (Recovery) programme, which was initially set up to support people with Long Covid. Funding was allocated to all Health Boards in Wales to develop community focussed multi-disciplinary rehabilitation services, supported by referral pathways into secondary care for those who need it.
In March 2023 I announced an increase in recurrent funding for these services from £5m to £8.3m. This was to enable services to be widened to people with other long-term conditions whose rehabilitation and recovery needs are similar to people with long COVID – including those with ME/CFS.
I expect Health Boards to engage with people with lived experience, including (WAMES), to co-produce their Adferiad (Recovery) funded service models.
NB WAMES approached all Health Boards, but only a few engaged with us about the content of their services, and there has been no co-production or co-design.
‘Co-production is the basis of forming an equal relationship between professionals, the people using the services, their families, and carers. Co-production recognises the contribution of individuals towards the creation of sustainable health and social care opportunities’. NHS Wales