Respect and include unpaid carers for people with ME/CFS
Prioritising unpaid carers in new approaches to ME/CFS Dr Siobhan O’Dwyer, a Senior Lecturer in Ageing and Family Care at the University of Exeter Medical School, consulted carers of…
Make severe ME visible – Severe ME day, Sun 8 Aug 2021
Making severe ME visible An estimated 25% of people with ME are so ill they rarely leave their homes or beds. They feel invisible and ignored. On Severe ME…
What ME/CFS caregivers want you to know
What ME/CFS caregivers want you to know, by Bobbie Ausubel in Work vol. 66, no. 2, pp. 361-364, 2020 July 20 [DOI: 10.3233/WOR-203171] Eight stories comprise this paper: Stories were written…
Carers Week 8-14 June 2020: Making caring visible
Carers Week 2020: Making caring visible Carers Week is an annual campaign to raise awareness of caring and highlight the challenges unpaid carers face recognise the contribution they make…
No such thing as retirement for older carers
Carers Trust article, 7 Feb 2017: No such thing as retirement for older carers, says new Carers Trust report Older carers say they are now doing the hardest job they…
Carers & social care reform – Sylvia Penny interview
WAMES’ volunteer Sylvia Penny who cares for her adult daughter with ME, her adult son with asperger’s and her 90 year old mother, was one of the people interviewed on…