ME/CFS Delivery plan: Unhelpful language
Language can hurt “The way language is used can frustrate or upset people who have ME/CFS.” This is one of the discoveries made by the Working Group who have…
500 miles for ME: Carer Rob raises £1,000 for WAMES!
500 miles for ME – Rob raises £1,00 for WAMES Rob began his challenge in June – to walk 500 miles for ME over the course of 100 days,…
Energy limiting conditions 3
The final report looked at: The Impact of Poor Healthcare on Mental Health and Wellbeing Challenges of Delayed or Misdiagnosis Impact of Disbelief on All Areas of Life The Intersection…
MEA finds low opinion of NHS services for ME in Wales
MEA Count ME In survey of health and social care for ME/CFS and Long COVID 7,303 people in the UK completed the ME Association’s survey: 85% (6,208 people) had…
Energy Limiting Conditions: challenging disbelief & disregard (2)
Disbelief and Disregard in health and social care for people with Energy Limiting Conditions (ELC) Part 2 A research project into Energy Limiting Conditions (ELC) wanted to understand the…
#DecodeME DNA study – the final push!
#DecodeME – sign up by 15 November 2023 It is now one year since the launch of the world’s largest DNA study for ME/CFS and the #DecodeME team have…
Energy Limiting Conditions: challenging disbelief & disregard (1)
Disbelief and Disregard in health and social care for people with Energy Limiting Conditions (ELC) Part 1 A research project into Energy Limiting Conditions (ELC) wanted to understand the…
Letter to those in a world untouched by ME, from Rachel
A letter to the world This is a piece of prose I wrote in the early years of living with ME. I remember feeling immensely frustrated when people in…
DePaul Symptom Questionnaire-Brief (DSQ-Brief): a brief screening scale for ME/CFS
A brief screening scale for ME/CFS Health professionals often use questionnaires to determine if a person has a particular illness. Prof Leonard Jason’s DePaul Symptom Questionnaire has 54 questions…
Biomarker research: Developing a blood cell-based diagnostic test with Raman microscope
ME/CFS Biomarker is possible with Raman spectroscopy Researchers led by Prof Karl Morten in Oxford are confident they have found a suitable way of distinguishing between healthy people, other diseases…
